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Showing posts with label infertility. Show all posts
Showing posts with label infertility. Show all posts

22 October 2011

Living Childfree


Another interesting essay in the New York Times Motherlode section, this one on life after choosing to stop infertility treatments. "Every woman facing infertility has to decide when she’s had enough, when she has reached her ethical, emotional, and/or financial edge."

I am very happy with my decision to continue fertility treatments through three round of IVF and genetic testing, but I can totally see how liberating it could be to make the decision to stop.

The article also explores the minefield entered by asking "why don't you just adopt." I was impressed by the author's bravery in articulating, among other things, her ambivalence toward parenthood in the wake of failed infertility treatments.

The image at right is a still from the movie Julie and Julia. It is not from the moment described in the introduction to the essay, in which Julia feels the pain of infertility, but from another, happier moment in her marriage.

09 October 2011

Resolve Needs Your Name

RESOLVE has prepared a letter requesting that infertility treatment be considered an essential health benefit which will be sent to Secretary Sebelius on November 1.

Consider signing this petition.
Note:
The Essentials Health Benefits are not an insurance mandate and will not force employers to include infertility in their existing coverage. But this is a vital first step to ensuring that infertility treatment be covered by health insurance for everyone.

05 November 2009

A Tale of Two Clinics

There are two large fertility treatment centers in the large metropolitan city in the neighboring county. The first is affiliated with a large teaching hospital, and the second is a private fertility clinic. Their ranking in most areas is the roughly the same, and the price of treatment is also similar. I am insured by two excellent PPO insurance carriers, (who probably won’t be sending me holiday cards this year) but neither plan offers fertility coverage.

My initial fertility work up and first round of IUIs were done at the large teaching hospital, mostly because my primary care doctor belonged to the IPA affiliated with the hospital. There are a lot of good things to say about that center- the staff physicians were excellent, the lab was excellent, and a wide range of specialists collaborated with the center to provide ancillary tests and analysis. As I progressed through treatment, however, I encountered some issues that were so serious that my husband and I decided to leave the large hospital and pursue treatment at the private center. Specifically:

Teaching hospitals have a dual purpose: to treat patients and to train physicians, (also to conduct research, more on that in another post) and those activities generally amount to the same thing, as far as patients are concerned. You know the doll who gets yanked off the shelf for the community CPR class? Congratulations, you’re that doll. And while I am the first person to appreciate that physicians have to start somewhere, my personal experience, as a CPR doll was, how to say not exactly, exquisite. Here were two problems that could have been avoided:

- I researched my Reproductive Endocrinologist (RE) a lot, and luckily enough, she accepted me as a patient. So far, so good. However, she was not the clinician who performed most, or any, of the actual procedures, and probably more importantly, she was not the physician who monitored my progress. Or, at least, not until I developed multiple cysts after several months on Clomid- cysts that should have been monitored prior to every procedure, and were not.

- There’s a new commercial for a pregnancy test (I have no idea if it’s a new pregnancy test), with the byline “1 in 4 woman can misread a traditional pregnancy test.” Ok. Fair enough. I suppose that under the right circumstances, 1 in 4 people can misread nearly anything, so I’m not going to deconstruct that statement. But the Ovulation Predictor kits suggested by my RE….good lord. Now that was rocket science. I need to devote an entire post to explain why this was so. But in any case, it is for this reason that the private clinic doesn’t use them at all, instead relying on ultrasound monitoring to appropriately time IUIs. Also, the private clinic uses ultrasound monitoring to look for the development of cysts. Also the private clinic uses ultrasound monitoring to ensure that CLomid hasn’t decreased the ovarian lining to a thickness that would not be conducive to implantation. For those three reasons, my IUIs at the teaching hospital were pretty much pointless. I think I should devote another blog post to why exactly one probably doesn’t want to go through pointless IUIs, with the adroitly named TomCat catheter.

27 October 2009

fertility work-up: the second time is twice as nice!

Nearly three years have passed since I last went through a fertility workup, and I am due for a repeat. The standard workup consists of a battery of tests. All things being equal, in terms of number of tests, simple blood analysis make up the majority. I couldn't give you an exact number, but I have learned that it's best not to count the number of vial labels that the lab tech exchanges for the lab requisition slip (one label per tube, at least three tubes per work up). Also-note that the pre test instructions are not theoretical. During my first work up, in my mid twenties, I made the mistake of having an FSH analysis (I think it was an FSH analysis, anyway) shortly after taking a dose of Clomid. I wouldn't recommend that particular course of action unless you are the bizarre sort of comedian who wants your ob/gyn to think you are a candidate for premature ovarian failure.

Certain other tests, including follicle counts with the craftily designed transvaginal ultrasound, (in the interest of not getting booted off Blogger, I’m not going to include a link) do not exactly rank high on the fun list, but can be gotten through. Others, such as the HSG, are rather unforgettable and I will in no uncertain terms drink bleach if I am made to repeat that particular test again. I will say, with regard to the HSG, that I object to the idea far more than the actual procedure, which was uncomfortable but not painful. Luckily, the only tests I need to repeat are the labs and the follicle count.

Because no test has ever indicated a definitive cause of infertility, there's not a good reason for me to worry about the results, which doesn’t mean that there aren't plenty of other shoddily constructed and weakly articulated reasons. I'm one of those people who subscribes to the idea that if you don't believe in the principle of induction, (not to be confused with a similarly named step in the IVF procedure) the principle of induction doesn't apply to you, much like ghosts for children or hell for athiests. I am absolutely aware that people who go around verbally articulating these things are irritating to be around, but by God, I've earned it, what with the rare cancer lottery and all. So just because a test has come back normal five out of five times, doesn't mean that, say, the sixth time, it's not going to indicate that I am not only in full-blown premature menaupause, but have contracted liver flukes and will any day now express a latent gene for supernumary teeth, because I've always had sort of questionable orthodontia.

All this is to say that I’m not having the tests re run until my next appointment with the endocrinologist, which will be in approximately 33 days +/-.

25 October 2009

when you hear hoof beats

Don’t look for zebras. Unexplained fertility is a misnomer. It is a transitory point in time that comes after the failure of fertility treatments based on the educated guess of the moment. It’s the fall back when the injections, hormone replacement, hormone suppressant, radioactive dye insertion, catheter procedures and prodding and altogether too much poking around, fail. Sometimes there is a post treatment regroup, and it comes after this too, after you’ve tried the acupuncture needles, the boiled seed pods and east Asian herbs and possibly, if you haven’t disclosed your vegetarian status, gecko. It comes after you, a lifelong agnostic, have visualized your uterus to be a metaphysical white glowing nest of life, after you have publicly banned your husband from the spinning bikes at the gym, after you’ve taken the drain from the bath and placed it in the linen drawer, where it can’t be used to take hot water baths, that mortal enemy of male fertility. Behind every unexplained fertility diagnosis are the best guesses of the OB/GYN, endocrinologist, andrologist, urologist, mother, mother in law, inquiring neighbor, well-meaning friend. Unexplained fertility exists to prove Hickam’s dictum. And now, I can bid that diagnosis goodbye, good riddance, certainly a well-earned good luck, because a little over a month ago, I turned thirty-five, which puts me unambiguously in the infertility category of “advanced maternal age.”

How do you like them horses?

Infertility hasn’t consumed my life. In 2006, just as I was in the middle of a series of IUIs, my father, then sixty, who was probably my closest friend in the world, was diagnosed with adenocarcinoma of the ampulla of Vater. This is a bad cancer, a rare cancer, so rare that there is no real treatment protocol, a bona fide fascinoma. The current course of treatment for ampullary cancer follows the one used for pancreatic cancer. After a few months of the roller coaster that Nayla referred to earlier, my husband and I decided to delay our fertility treatments. And why not, after all? I had plenty of time. We adopted a shelter cat named Lola, and two years passed.

In the summer of 2008, three weeks before my appointment to resume fertility treatment at a large medical center in the neighboring county, my mother asked if I wouldn’t mind taking my sister to the airport. Our mother had a medical appointment that day, and might not be feeling so well after. My mother, a non-smoking, non-drinking, near vegan, has never been less healthy than a horse (that mythical creature) so I didn’t think too much about it. One week and a few days later, she was diagnosed with second to third stage squamous cell esophageal cancer, a rare cancer seen most often in heavy drinkers and smokers.

I am a congenitally pessimistic person. I’ve never quite been able to convince myself that lilies will bloom at room temperature, so I either buy them past the bud stage, or worry the petals until they turn a filthy brown and then lop over. Even so, I did not see this coming.

During the next eight months, my mother went through chemotherapy, radiation, and a certain surgical procedure colloquially referred to as “the mother of all surgeries,” while my fathers’ health declined precipitously, as the cancer metastized to his spine and meningeal layer. One morning in December, as I sat in traffic on Highway 101, my mother, in the passenger seat, vomited into the small plastic container that now followed her everywhere. I dialed AT&T directory assistance, and asked them to patch me through to the local hospice agency. That morning, on the two-hour drive to my mother’s chemotherapy appointment, I arranged for in home hospice.

Outside of the bay window of my parent’s house, there is a hummingbird feeder that has created a generational welfare state among the birds of our street. It’s a lovely thing to see in summer, above the green lawn, the American Beauties and the plum tree, but in winter we let the lawn go fallow, and bright red plastic of the feeder is something garish against the brown grass and bare thorns. Still though, I believe that the easy availability of sugar water has offset normal avian reproductive constraints, because hummingbirds visit the feeder year round, or at least they did that winter, when I spent plenty of time staring out the bay window, at the hummingbirds on the other side of the glass, the dead lawn and the desiccated rose hedge, the county road that is never quite maintained and the field beyond that, the jackrabbits and the pheasants and even, like an awkwardly timed joke, the Appaloosa horses kept by our neighbor. After my mother and I returned from chemotherapy that day, we moved a hospital bed into the living room, moved my father to the bed, and that is where he died six weeks later.

There are two separate ways through which I measure time; the first is the thirty-five year mark, an alarmingly red chronological demarcation line that increases medical costs at the fertility clinic and decreases odds of conception. The second is in the passing of time since last winter, in they way I’m never quite sure what month it is, whether I should look for potholes in the road, or replace the air conditioner filters. In sense, I’ve not moved past last January, while my body, consistently uncooperative, has moved on into another, more precarious phase. So it is with some misgivings that I am going to be starting fertility treatments. Some. But less than I would have had, had I not met Nayla.

I’m sorry, how rude. Let me provide an introduction: